Caregiving Issues
Leadership Council Policy Options Whitepaper
Information from 2010 MNLCOA Summit: Caregiver Support in MInnesota
Background information on Caregiver Needs and Policy Issues Below
Population Needs Assessments
Evercare® Study of Caregivers in Decline: A Close-up Look at the Health Risk of Caring for a Loved One
What Will Keep Family Caregivers Caring? Transform 2010 Policy Brief: Examining Issues Critical to the Age Wave
2009 Elderly Waiver [Minnesota] Statewide Consumer Experience Survey Executive Summary of in-person interviews of elderly enrolled in Medicaid-covered community-based services. [Note: There was a signficant drop in numbers also receiving help from family since 2007 survey.]
2009 Minnesota County Long-term Care Gap Analysis Survey Executive summary with links to individual counties' gap analyses
2010 MetLife Study of Working Caregivers and Employer Health Care Costs. This report reviews the impact of caregiving on employer health care costs. Recommendations that may provide support to caregivers are included in the report.
2008 Minnesota Behavioral Risk Factor Surveillance Survey Caregiving Module A randomized telephone‐based survey designed to measure behavioral risk factors for the adult population that included a 13 question standardized CDC approved caregiving module.
Federal Medical Leave Act
The Family and Medical Leave Act is outlined in the Federal statutes, Title 29, Code of Federal Regulation (CFR), Chapter V, Part 825.
The New Jersey Family Leave Act is outlined in the state statutes. New Jersey Stautes Annotated (NJSA) Title 34:11B-1 to 16. New Jersey expands Federal FMLA to include in-laws, not just parents.
Caregiver Coaching and Related Research
Research review article from Metropolitan Area Agency on Aging
McGee, P. and H. Tuokko. 2005. Partners in Care: Empowering Caregivers Through Coaching. Centre on Aging, University of Victoria.
Mittelman, M. S., Haley, W. E., Clay, O. J., Roth, D. L. 2006. Improving caregiver well-being delays nursing home placement of patients with Alzheimer disease. Neurology, 67: 1592-1599.
Montgomery, R. J. V. and Kosloski, K. 2009. Caregiving as a Process of Changing Identity: Implications for Caregiver Support. Generations, Journal of the American Society on Aging, 33(1): 47-52.
Family Caregivers, Patients and Physicians: Ethical Guidance to Optimize Relationships, American College of Physicians Ethics, Professionalism and Human Rights Committee Position Paper, 2009 available at: www.rosalynncarter.org/UserFiles/File/caregivers.pdf
Transform 2010 Policy Brief – Examining Issues Critical to the Age Wave, 2009 available at: www.dhs.state.mn.us/main/idcplg?IdcService=GET_FILE&RevisionSelectionMethod=LatestReleased&Rendition=Primary&allowInterrupt=1&noSaveAs=1&dDocName=dhs16_145250
Caregiving in the US, Executive Summary, National Alliance for Caregiving in collaboration with AARP with funding from MetLife Foundation, 2009, available at
http://assets.aarp.org/rgcenter/il/caregiving_09_es.pdf
The Evercare Survey of the Economic Downturn and its Impact on Family Caregiving, Evercare in collaboration with National Alliance for Caregiving, 2009, available at: http://www.caregiving.org/data/EVC_Caregivers_Economy_Report%20FINAL_4-28-09.pdf
Reimbursement for Caregiver Support
Medicare Reimbursement for Caregiver Education - Center for Medicare and medicaid Services (CMS) Medlearns